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Planning Ahead: Legal and Financial Issues
https://www.asantcafe.ca/learn/session/8
This is an online educational session that reviews the legal and financial issues you need to consider to prepare for the challenges that lay ahead.
Advance Care Planning
http://www.advancecareplanning.ca/
It is important that others know your wishes so that your voice will be heard if you cannot speak for yourself. This website contains useful information on advance care planning.
,Booklet
The Progression of Alzheimer's Disease
This valuable resource is available online at:
http://www.alzheimer.ca/english/disease/progression-intro.htm
Websites
Alzheimer Society of Canada
http://www.alzheimer.ca
The Alzheimer Society of Canada identifies, develops and facilitates national priorities that enable its members to effectively alleviate the personal and social consequences of Alzheimer's and related diseases, promotes research and leads the search for a cure. On this website you will find facts, causes, myths, statistics, support groups and treatment options.
The Alzheimer Society has useful information on the transition to long term care. Information on preparing for the move, the moving day, and adjusting can be found at the following link: http://alzheimerottawa.ca/we-can-help/links-and-resources/e-learning/transition-to-long-term-care
Canadian Hospice and Palliative Care Association
http://www.chpca.net/
The Canadian Hospice Palliative Care Association (CHPCA) offers leadership in the pursuit of excellence in care for persons approaching death so that the burdens of suffering, loneliness and grief are lessened. You will find a list of palliative care programs in different provinces and resources.
Changes Toolkit
https://www.changestoolkit.ca/
The Changes Toolkit is a website with activities and resources to help palliative care patients and their family caregivers deal with transitions.
Health Canada: Natural Health Products
http://www.hc-sc.gc.ca/
The Natural Products site at Health Canada provides information on "herbal" or other natural products. Go to the Health Canada website (use the link above). Click on: (1) English, (2) Drugs and Health Products (on the left side), (3) Natural Health Products (also on the left side).
Heart and Stroke Foundation
http://www.heartandstroke.ca
The Heart and Stroke Foundation, a volunteer-based health charity, leads in eliminating heart disease and stroke and reducing their impact through the advancement of research and its application, the promotion of healthy living, and advocacy. On this website you will find health information about heart disease, stroke and healthy living, as well as multicultural resources.
Health Canada: Drug Products
http://www.hc-sc.gc.ca
The Drug Products site at Health Canada provides information on drugs approved for use in Canada. Go to the Health Canada website (use link above). Click on: (1) English, (2) Drugs and Health Products (on the left side), (3) Drug Products, (4) Drug Product Database, (5) Access the Drug Product Database.
Living With Dementia: Resources for Living Well
http://www.livingwithdementia.uwaterloo.ca/index.html
This site was developed for persons living with dementia and their family care partners. It contains helpful information and resources to help prepare for the road ahead.
Medline Plus (U.S.)
http://www.nlm.nih.gov/medlineplus/
Medline Plus contains information on a wide range of diseases, medications, and other health topics. Some information is available in multiple languages or in multiple formats (e.g. text, video, and interactive tutorial).
Books about Real-Life Dementia Experiences
€˜Dancing in the Elevator' by: Barbara Schulman, Beverly Grostern and Donna Lordon.
This book contains a compilation of anecdotes about life with Alzheimer's disease.
€˜Dancing with Dementia' by: Chrisitne Bryden
This book is a vivid account of a top civil servant and mother of three who was diagnosed with dementia at age 46. The author writes about the day to day challenges she deals with as a person affected by dementia.
Research Studies
Aging, Community and Health Research Unit (https://achru.mcmaster.ca)
Caregiver-Friendly Workplaces (http://ghw.mcmaster.ca)
Living with Hope Research Program (http://www.nurs.ualberta.ca/livingwithhope)
Murray Alzheimer Research and Education Program (https://uwaterloo.ca/murray-alzheimer-research-and-education-program/education-and-knowledge-translation/products-education-tools/by-us-for-us-guides#Safely)
Guide: Write contact information of people you may wish to contact during your changes. These can include community resources.
For example: Family doctor, nurse practitioner, home care contact, financial advisor, lawyer, community center, spiritual support, grocer who will deliver food, pharmacist, friends, and family members.
Consider storing this list in your smart phone or other electronic device for quick access in an emergency.
,You need to keep yourself healthy and well in order to care for others. It's up to you; nobody else is able to do it for you.
Guide: Do something for yourself to avoid caregiver stress. Decide what you want to do (not what you should do, or have a need to do) and write some ideas below. For example, going for a 20 minute walk, or connecting with other care partners.
One possibility for connecting with other Care Partners is through support groups. Consider reaching out to your local Society to inquire about available support groups in your area.
,
Some days may be challenging. Being reminded about the things that give you strength might help you.
Guide: Think about the things that help you and give you strength.
Sifting and sorting through years of family history and possessions can feel overwhelming. It's important at this time to seek support from friends and family members and remember that you are not alone.
Don't wait for a crisis: plan ahead. Learning about your options and being organised may help you to make this transition more easily. The following steps may help you and your family regain a sense of control over what might feel like an unmanageable situation.
Advocacy and Communicating with Staff:
Person-Centred Language Guidelines
Grieving and Loss:
Seeds of Hope Family Learning Series (Session 14 - Taking Care of You: Grief and Self Care)
Ambiguous Loss & Grief - brainXchange Webinar
Transitioning to Long-term Care:
Visiting a Person with Dementia
The Visitor Guest Book: A Tool to Stay Informed
Other Information:
Helping children understand Dementia
Links to other fact sheets for caregivers by the Alzheimer Society, ranging from tips for after the move, care for the caregiver, maintaining relationships, taking a break, financial planning, and managing conflict.
Websites and Online Communities:
Alzheimer Society: About Dementia
Dementia is a general term that refers to a variety of brain disorders. Physical changes in the brain cause dementia. Learn more in this section about dementia, its impact on the brain, and how to keep your brain healthy.
Canadian Hospice and Palliative Care Association
The Canadian Hospice Palliative Care Association (CHPCA) offers leadership in the pursuit of excellence in care for persons approaching death so that the burdens of suffering, loneliness and grief are lessened. You will find a list of palliative care programs in different provinces and resources.
The Changes Toolkit has activities and resources to help palliative care patients and their family caregivers deal with transitions.
Health Canada: Natural Health Products
The Natural Products site at Health Canada provides information on “herbal” or other natural products. Go to the Health Canada website (use the link above). Click on: (1) English, (2) Drugs and Health Products (on the left side), (3) Natural Health Products (also on the left side).
The Heart and Stroke Foundation, a volunteer-based health charity, leads in eliminating heart disease and stroke and reducing their impact through the advancement of research and its application, the promotion of healthy living, and advocacy. On this website you will find health information about heart disease, stroke and healthy living, as well as multicultural resources.
The Drug Products site at Health Canada provides information on drugs approved for use in Canada. Go to the Health Canada website (use link above). Click on: (1) English, (2) Drugs and Health Products (on the left side), (3) Drug Products, (4) Drug Product Database, (5) Access the Drug Product Database.
Living With Dementia was developed for persons with dementia and their family care partners. It contains helpful information and resources to help prepare for the road ahead.
Medline Plus contains information on a wide range of diseases, medications, and other health topics. Some information is available in multiple languages or in multiple formats (e.g. text, video, and interactive tutorial).
Books about Real-Life Dementia Experiences:
Dancing in the Elevator by Barbara Schulman, Beverly Grostern and Donna Lordon.
This book contains a compilation of anecdotes about life with Alzheimer’s disease.
Dancing with Dementia by Christine Bryden
This book is a vivid account of a top civil servant and mother of three who was diagnosed with dementia at age 46. The author writes about the day-to-day challenges she deals with as a person affected by dementia.
The Alzheimer Society of Canada: The Alzheimer Society of Canada identifies, develops and facilitates national priorities that enable its members to effectively alleviate the personal and social consequences of Alzheimer's and related diseases, promotes research and leads the search for a cure. On this website, you will find facts, causes, myths, statistics, support groups and treatment options.
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