I am Living with Dementia
I am a person living with dementia. Whether I have been given a formal diagnosis or I'm concerned about my cognitive health, I could be living with dementia.
Summary of what Living with Dementia is:
You've likely been worried and anxious about the changes you're seeing in yourself. Now that you've been diagnosed, know that there are education and resources to support you. If you've just been diagnosed with dementia, you may need some time before sharing the news – or you may want to talk about it right away. Dementia impacts your cognitive, emotional, physical and social abilities. Understand how these changes can affect you and know how you can prepare and adjust accordingly to live well with dementia.
Education
Live Events and Meetings
More meetings coming soon!
Subscribe Form
"*" indicates required fields
End Of Life: Getting the Paperwork in Order Session 4
End Of Life: Saying Good-Bye Session 3
End Of Life: End of Life Care Session 2
Bringing out the best, living well together with dementia - The UK Butterfly Approach
End Of Life: Ethical Choices Session 1
I'm Still Here Public Forum
Middle Stage: Living with Change Session 5
Middle Stage: Living with Change Session 4
Middle Stage: Living with Change Session 3
Middle Stage: Living with Change Session 2
Middle Stage: Living with Change Session 1
Mind over Matter - Keeping Control over Bladder and Bowel Incontinence
Resources
My grandmother had Alzheimer's disease. Will I develop it as well?
There are two types of Alzheimer's disease.
Familial Autosomal Dominant (FAD) Alzheimer’s disease accounts for less than 5% of all cases of Alzheimer’s disease and is linked to genetics. For FAD to occur, the disease must be evident across multiple generations of a single family.
Sporadic Alzheimer's disease is the most common form of Alzheimer's disease, and it does not have a specific family link. People with this type may or may not have a family history of the disease.
What is the difference between Alzheimer’s disease and Dementia?
The word dementia is an umbrella term that refers to many different diseases. Different physical changes to the brain cause various types of dementia. Some dementias are reversible, meaning that they can be treated and cured, while others are irreversible, meaning that there is no cure yet.
Dementia is not a specific disease. Many diseases can cause dementia, including Alzheimer's disease, vascular dementia (due to strokes), Lewy Body dementia (LBD), head trauma, frontotemporal dementia (FTD), Creutzfeldt-Jakob disease (CJD), Parkinson’s disease, and Huntington’s disease. These conditions can have similar and overlapping symptoms.
Dementia is an overall term for a set of symptoms that are caused by disorders affecting the brain. Symptoms may include memory loss and difficulties with thinking, problem-solving or language, severe enough to reduce a person's ability to perform everyday activities. A person with dementia may also experience changes in mood or behaviour.
