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I am  Living with Dementia

I am a person living with dementia. Whether I have been given a formal diagnosis or I'm concerned about my cognitive health, I could be living with dementia.

Summary of what Living with Dementia is:

You've likely been worried and anxious about the changes you're seeing in yourself. Now that you've been diagnosed, know that there are education and resources to support you. If you've just been diagnosed with dementia, you may need some time before sharing the news – or you may want to talk about it right away. Dementia impacts your cognitive, emotional, physical and social abilities. Understand how these changes can affect you and know how you can prepare and adjust accordingly to live well with dementia.

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Living With Dementia

Education

Whether you have a diagnosis or are just browsing, know that there are education and resources to support you.
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Living with Dementia

Live Events and Meetings

Stay updated with our latest videos and insights on dementia care.
Upcoming Live Meeting
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Discover more Past Live Meetings:
Past Live Meeting
Late Stage: Preparing for Changes Ahead Session 3
A physician will explain the changes individuals with dementia are likely to experience in the later stages of the disease so you know what to expect. Life transitions and decision making will also be discussed.
Oct 30, 2017
60 minutes
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Past Live Meeting
Late Stage: Working with Care Providers Session 2
A facility worker will discuss the role of family and staff when someone moves into a care facility and how to help everyone adjust.
Oct 23, 2017
60 minutes
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Past Live Meeting
What Matters Most!
Please note this meeting will start at 7pm CDT as it is being hosted from Manitoba.Join us for the Alzheimer Society of Manitoba's live meeting with Heather Ann Dixon, Legal Counsel. She will discuss the importance of having an up to date will, power of attorney and health care directive. She will review why choosing someone you trust and who understands your wishes and values is the most important step when preparing these documents. Responsibilities of a person designated in the legal roles of executor, power of attorney or health care proxy will be also be discussed.
Sep 28, 2017
60 minutes
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Past Live Meeting
Depression and Care Partner Burnout
Join us to hear Dr. Hannah Cherniawsky BMSc, MD of the University of Alberta speak on care partner burnout. She is the current leader of the Health Savvy Seniors Initiative. The initiative aims to educate and empower seniors to be active members of their health care team. Then we will have a presentation on depression, this will be given by a second year medical student from the University of Alberta, she is new to the initiative but is excited to be a community advocate for seniors.
May 18, 2017
60 minutes
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Past Live Meeting
Solving Alzheimer's disease: A search for the Holy Grail!
Dr. Jack Jhamandas will speak on current research being done with Alzheimer Disease and related dementia.Dr. Jhamandas is currently a Distinguished University Professor in the Division of Neurology at the University of Alberta. He is a practicing neurologist and neuroscientist whose research interests focus on misfolded proteins in Alzheimer's and prion diseases and aspects of brain control of cardiovascular function.
Apr 11, 2017
60 minutes
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Past Live Meeting
Early Stage: Planning Ahead Session 4
A lawyer will explain the legal and financial documents you need to get done in the early stage while the person with the disease has capacity to make decisions and make their wishes be known. You will have a chance to examine the barriers that often prevent planning ahead.
Mar 27, 2017
60 minutes
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Past Live Meeting
Roger Marple Live Meeting
Please join us as Roger shares his story of his journey with Alzheimer's disease. We will then open up the live meeting for a Q & A portion with Roger.
Mar 23, 2017
60 minutes
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Past Live Meeting
Early Stage: Understanding Dementia Session 3
A geriatrician will explain the medical management of the disease including types of dementia, diagnosis, risk factors, symptoms, treatment, and progression.
Mar 20, 2017
60 minutes
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Past Live Meeting
Early Stage: You as a Care Partner Session 2
Learn what you might expect in your role as a family care partner from an experienced family member who has completed this journey. Find out how your role might impact your relationship with your family member, what emotions you might experience and what challenges you might face. Start planning how to care for yourself during this journey.
Mar 13, 2017
60 minutes
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Past Live Meeting
Be Ready for an Emergency Department Visit
Dr. Kathleen Hunter and Dr. Belinda Parke discuss ways to be prepared in the case a visit to an Emergency Department is necessary.Whether it is a planned admission or an unexpected emergency visit, the unfamiliar noises and activities of a hospital can be especially upsetting for a person living with dementia. Preparation can improve a visit.
Mar 7, 2017
60 minutes
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Past Live Meeting
Early Stage: Exploring the Experience of Dementia Session 1
Someone with dementia will help you understand dementia from their perspective - how it feels, the challenges they face and how they maintain hope. You will also be introduced to the concept of person-centered care and learn about healthy life style choices for people with dementia.
Mar 6, 2017
60 minutes
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Past Live Meeting
Anne Baltimore Story
Please listen along as Anne shares her story about her mother who was diagnosed with dementia and their family's journey through the progression.
Feb 1, 2017
60 minutes
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See all Live and Past Events
Living with Dementia

Resources

Our Society links individuals and families affected by Alzheimer's disease and other dementias to a community of learning, information and support.

What are the stages of Alzheimer’s disease?

Alzheimer's disease progresses through different stages, which bring about changes in the person's and family's lives.

The early stage refers to people of any age who have mild impairment due to symptoms of Alzheimer’s disease.

The middle stage brings a more significant decline in the person’s cognitive abilities. This stage often seems the longest, and everyone involved will need help and support.

The late stage occurs when the person living with Alzheimer's disease eventually becomes unable to communicate verbally or look after themselves. Nonverbal communication becomes more critical.

You can read more about these stages in the series The Progression of Alzheimer’s Disease or type a question in the search bar above.

How fast does Alzheimer’s disease progress?

Alzheimer's disease affects each individual differently. The symptoms, the order in which they appear, and the duration of each stage vary greatly from person to person.

In most cases, the disease progresses slowly, and the symptoms of each stage may overlap, often making the move from one stage to another quite subtle. The duration of the disease is usually seven to ten years but may be much longer in some people.

I keep forgetting things, do I have Alzheimer's disease?

Most people forget things on a daily basis, such as people's names or where they put their car keys. However, this doesn't necessarily indicate Alzheimer's disease or any other form of dementia. In dementia, memory loss is more severe than forgetting things occasionally. It starts to interfere with everyday life. For instance, it might be time to see your doctor if you find your car keys but can't recall what they are used for.

There are many reasons why people become forgetful. Some medicines and drugs can affect memory. Getting a proper diagnosis is important, as memory issues can be caused by stress, depression, anxiety, vitamin deficiencies, and thyroid problems. If you are worried about your memory, if it’s getting worse, or if it's interfering with your everyday life, talk to your doctor.

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