I am Living with Dementia
I am a person living with dementia. Whether I have been given a formal diagnosis or I'm concerned about my cognitive health, I could be living with dementia.
Summary of what Living with Dementia is:
You've likely been worried and anxious about the changes you're seeing in yourself. Now that you've been diagnosed, know that there are education and resources to support you. If you've just been diagnosed with dementia, you may need some time before sharing the news – or you may want to talk about it right away. Dementia impacts your cognitive, emotional, physical and social abilities. Understand how these changes can affect you and know how you can prepare and adjust accordingly to live well with dementia.
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What is involved in getting a diagnosis?
There is no single test that can determine if a person has Alzheimer's disease. The diagnosis is made through a series of tests that help eliminate other possible causes. Until there is a conclusive test, doctors may continue to use the words "probable Alzheimer's disease." However, you should be aware that doctors making this diagnosis are accurate 80 to 90 per cent of the time.
Making the diagnosis can take time. If scans and other investigations are required, it could be 4-12 weeks, depending on waiting lists. If the person is in the early stages of dementia, a 6-12 month period of monitoring may be required before a diagnosis can be made.
I think my partner has dementia. How do I convince them to see a doctor?
Remember that many conditions have symptoms similar to dementia, so it is important not to assume that someone has dementia just because some of the symptoms are present. Strokes, depression, alcoholism, infections, hormone disorders, nutritional deficiencies and brain tumours can all cause dementia-like symptoms. Many of these conditions can be treated.
If your partner is reluctant to see a doctor, this can be a tricky situation. They may not be aware of the changes in their abilities that you see. You might try one of the following:
- Make sure the doctor knows of your concerns before the appointment. Be as specific as possible. This checklist can help you prepare for your doctor’s visit.
- Suggest she go for an annual check-up. She may be more comfortable getting an overall check-up than seeing the doctor for memory problems. Many symptoms that look like Alzheimer's disease can be caused by other treatable conditions, so it's essential to get a thorough assessment if you have concerns.
- Contact the doctor's office and ask if they can invite your partner for a check-up. If the doctor suggests the appointment, your partner might be more willing to go.
- Be sure to provide a lot of reassurance. A calm, caring attitude at this time can help overcome the person’s very real worries and fears.
Is there a cure?
There is currently no cure for Alzheimer's disease and other dementias, nor is there a treatment that will stop the progression. Several drugs on the market and non-pharmacological treatments may help with some symptoms.
Some non-pharmacological therapies (such as music therapy, aromatherapy, pet therapy, and massage) may be beneficial to people with dementia. However, a lack of research prevents us from determining the effectiveness of many alternative treatments. The Alzheimer Society is funding projects in these areas in order to identify beneficial therapies for people with the disease.
When considering the use of natural health products, think about the following to minimize your risk:
Don't assume "natural" means "safe."
Be wary of unsubstantiated health-related claims.
Herbal remedies can change the way prescription drugs work. Be aware of interactions with other drugs and tell your doctor and pharmacist about any herbal remedies you may be taking.