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Preventing Dementia in Indigenous People's by Aging Well: Advice from older Indigenous peoples

Older Indigenous adults, people diagnosed with dementia, care partners, knowledge keepers and health care providers shared their experience for healthy brain aging. This fact sheet combines a summary of their advice and with advice from Alzheimer's societies.

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Preventing Dementia in Indigenous People's by Aging Well

View a pie chart to help breakdown the advice from older indigenous people's.

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What to Expect After a Diagnosis of Dementia: An Indigenous Persons' Guide

For people with a diagnosis of dementia... A diagnosis of dementia can be scary. Sometimes people diagnosed with dementia do not accept it at first. Many older people believe that changes to the mind come naturally with age and their journey through life. While some memory changes can be expected as you age, dementia as a disease will change your memory and concentration more quickly. For this reason, it is important to start talking about it now with your loved ones and others who will support you.

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Tips for Settling In

A tip sheet for people who have recently moved to long term care.

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Tips for care partners to make a holiday gathering special.

The holidays are all about spending time with friends and family. Including a person with dementia in these events is important because it helps them connect, through familiar faces and objects, to their past. And create new memories too.

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Tips for visiting someone with dementia during the holidays.

Over the holidays, people with dementia want to see people they care about, just like everyone else. But as dementia progresses, visits can become challenging. Whether the person you care for lives at home or in long-term care, it's best to come prepared. Even in later stages of the disease, there's still much you can do to provide comfort, care and spread some holiday cheer. Here are some tips to help the visit go smoothly.

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Gift ideas for people with dementia.

Here are some ideas to help you choose the right gift for someone dementia. Keep in mind that some of these options, like a CD, can be given to somebody in any stage of the disease. Also, as a general rule, don't give more than two or three presents. Too much stimulation can be a bad thing.

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Making the holiday season successful.

The holiday season can be particularly stressful for care partners and people living with dementia. Unfamiliar places, large groups of people, noise and a hectic pace can increase anxiety for those with the disease. Whether the person you're caring for lives at home or in long-term care, sticking to a regular routine will minimize stress.

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Person Centered Language Guidelines

By consciously using language in a more sensitive manner, we can avoid reducing individuals with dementia to a series of labels, symptoms or medical terms. Person-centered language focuses on the person, not on their condition. The use of person-centered language helps us deal with the fear and stigma surrounding dementia. By reducing the fear associated with dementia, people are more likely to acknowledge, learn and have discussions about dementia. These guidelines will introduce you to preferred person-centered terms that are meant to maintain dignity and respect for all individuals.

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Pain Matters

A family guide to pain management in dementia care.

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Involuntary Separation

The term “Involuntary Separation” does not mean getting a legal separation or divorce. This means that the spouses are considered single only for the purpose of calculating their OAS and GIS benefits.

“Involuntary Separation” refers to a situation in which senior couples must live apart due to circumstances beyond their control, often because one or both need long-term care. This separation can place a financial strain on the couple, especially if their income is limited to public pensions like Old Age Security (OAS), Guaranteed Income Supplement (GIS), and Canada Pension Plan (CPP).

Couples can apply for “Involuntary Separation” status under the Old Age Security Act to alleviate this. This allows each spouse to be treated as single for OAS and GIS calculations, potentially increasing their benefits. This status is granted when the separation is involuntary, such as when one or both spouses must move to a long-term care facility.

For more details, you can contact Service Canada or visit Your Complete Guide to Canada's Old Age Security Program.

To qualify for “Involuntary Separation” status under the Old Age Security (OAS) Act in Canada, the following criteria must be met:

Physical Separation - You and your spouse must be living apart, no longer under the same roof.

Involuntary Nature - The separation must be due to circumstances beyond your control, such as health issues requiring one or both spouses to move to a long-term care facility.

Age Requirement - At least one spouse must be 65 years or older and receiving OAS.

Marital Status - You must be legally married or in a common-law partnership.

If these conditions are met, you can apply to have each spouse treated as single to calculate OAS and GIS benefits, potentially increasing the financial support you receive.

To apply for “Involuntary Separation” status in Canada, follow these steps:

Obtain the Necessary Forms

Fill out the form with accurate information about your situation. Ensure you provide all required details to demonstrate that the separation is involuntary due to circumstances beyond your control.

Submit the Forms

You can submit the completed forms to Service Canada by mail, phone, in person, or online.

For further guidance, visit Service Canada or speak with a representative at 1-800-277-9914.

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Changes Toolkit

This book is about life changes. It is meant to help you prepare for possible changes, and to connect you with services in your community. It has suggestions and information about resources to help you. It is based on what people receiving palliative care, their families, and health care providers have told us.

Aging With Pride

A guide to creating inclusive services for LGBTQ2S+ for older adults.

Embracing Diversity

This toolkit is an interactive resource with print and online components. It will help you to learn about equity, diversity and inclusion and how to apply these concepts to your work in LTC.

Dementia in the Workplace

A guide for employers. Building a resilient and sustainable workforce. Purpose of this guide: Build awareness and understanding of caregiving in the workplace. Guide workplaces on how to develop policies and practices that are supportive to care partners and benefit the workplace. Support managers in workplaces to understand, support, accommodate and demonstrate a commitment to working care partners. Empower working care partners and enhance access to supports that address their unique challenges.

Work and Caregiving: A Balancing Act

This toolkit was designed to help you manage the competing needs of work and caregiving while taking care of your own health and happiness at the same time. Caregiving needs change over time - you may need to re-assess and problem-solve a few times to better manage work, caregiving and your own needs. You can revisit the sections of this toolkit as your needs continue to evolve. This toolkit provides practical tools and tips to help you find solutions that could work for you and your employer. You will learn about ideas to help you manage caregiving, options to explore greater flexibility and support at work, and tips for talking with your employer about solutions. Using this toolkit will help you understand the importance of taking care of yourself and your own mental health, in order to find a better balance in juggling the demands of being a working care partner.

Sporting Heritage Memories Handbook

How to use sporting heritage in memories and reminiscence activities. This handbook has been created to give you further insight into the application of sporting heritage programmes and provide a reference for your use in the future. It will help address issues such as training and the conduct of groups, as well as provide helpful hints as to how resources can be found and used.

Young Onset Planning Ahead Checklist

Being diagnosed under the age of 65 presents unique challenges and there are many topics to consider, including, finances, children, employment, and health wishes. Living with dementia can cause big changes in individuals and families future plans as many need to consider how life needs and wishes may change as a person's dementia progresses. Since there is no cure or treatment and dementia is a progressive disease that can affect reasoning and communication it is important to plan for your future and ensure that others know how they can assist you with putting those plan into action, when needed.

Care Planning Checklist for Young Onset Care Partners

Being diagnosed under the age of 65 presents unique challenges and there are many topics to consider, including, finances, children, employment, and health wishes. Living with dementia can cause big changes in individuals and families future plans as many need to consider how life needs and wishes may change as a person's dementia progresses. Your caregiving role is dependent on the needs of the person with dementia and your unique situation.

Young Onset Dementia Resources for Edmonton and Area Families

Young Onset Dementia is the term used to describe people under the age of 65 years who have been diagnosed with a type of dementia. People under the age of 65 years are often still working, many are raising dependent children, and some are also caring for an elderly relative. People with Young Onset Dementia have numerous decisions to make and a range of service options to consider as their dementia progresses. They frequently report not knowing what services are available or how to access those services. This resource guide is one of several documents to give information and support to Young Onset families as they journey through the process of gaining supports and services that they need as they live with dementia.

Tough Conversations for Young Onset Care Partners

Care Partners, these next scenarios are not here to scare you, but we want to make you aware of things that may happen. It is important to know that these things do not happen to everyone, but knowing it can, will better prepare you in the case these situations arise. Within each of the situations below, there can be many individual experiences, they can range mild to extreme. Remind yourself that your family member has dementia, and this is the cause of these situations.

Apprendre à se retrouver

Outil d'écriture pour soutenir les aidants à se retrouver eux-mêmes, après s'être occupés d'un conjoint vivant avec un trouble neurocognitif. Apprendre à se retrouver peut se révéler nécessaire au processus de deuil; il permet à une personne de passer à une autre étape tout en honorant son passé.

World Alzheimer Report 2021

Journey through the diagnosis of dementia.

After the Move: Communicating and working with the staff

The caregiving role does not end with the move; however, it evolves and is different in some respects. It can be daunting and difficult at first - what do I do now? Where do I fit in? You are now a "partner in care" with the staff. Your role is to inform, advise, recommend and encourage best quality care for your family member/relative/ friend.

Canadian Guideline for Safe Wandering

Person Living with Dementia Version

Canadian Guideline for Safe Wandering - Care Home

For people living in a care home setting.

CDAP Role

Outline of what the requirements are for an Ambassador

CP Planning - Resource Links - Early

Early

CP Planning - Resource Links - Middle

Middle

CP Planning - Resource Links - Late

Late