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Parkinson's disease (PD) is a progressive neurodegenerative disease that primarily affects the parts of the brain that controls movement, resulting in tremors, stiffness, and slowness. Difficulty walking and loss of balance typically emerge as the disease progresses. Some people may also develop dementia as their PD progresses into the later stages of the disease, often resulting in significant memory loss, difficulty concentrating, thinking, completing routine activities, and navigating in their environment. Behavioural problems are also common including depression, hallucinations and delusions.
Posterior cortical atrophy (PCA) is a rare progressive neurodegenerative disorder that causes damage and deterioration to the back, or posterior, region of the brain. That area of the brain is responsible for processing what and how we see. PCA may affect a person's vision, their ability to read and write, their ability to navigate, and to reach for objects.
Progressive Supranuclear Palsy (PSP) is a rare progressive neurodegenerative disease that causes vision difficulties and loss of balance while walking. It is due to an abnormal accumulation of a protein in the nerve cells, called tau, which causes parts of the brain to deteriorate over time. As a result, people with PSP may experience increased difficulty with their thinking, speech, swallowing and movement.
A traumatic brain injury (TBI) is caused by damage to the brain's tissue resulting from an external force such as a fall or a car accident. A TBI can often affect the overall cognitive functioning of a person and may result in significant challenges with thinking and learning.
People with dementia can live meaningful and productive lives for many years after an early diagnosis. Dementia diagnosed early helps both the person and family members to learn about the disease, set realistic expectations and plan for their future together. There are many benefits to an early diagnosis.
Principles for a dignified diagnosis is the first statement of its kind written by people with Alzheimer's disease about the experience of receiving a diagnosis and how to make it better. Although this document was initially intended for people with Alzheimer's disease, the principles of a dignified diagnosis are helpful in the diagnosis of all forms of dementia.
Through its culture change initiative, the Alzheimer Society of Canada aims to improve the experience of long-term care for people with dementia and their families, and is working with others to provide useful strategies, tools and tips that can help put the principles of person-centred care into practice. Seven key elements for delivering person-centred care stood out in our research. These are outlined in the information sheets below entitled PC P.E.A.R.L.S.®:
The Alzheimer Society believes that people with dementia have the right to enjoy the highest possible quality of life and quality of care. The Society believes that each person with dementia is an individual,regardless of stage of the disease and that care should be individually tailored to their unique needs, interests,habits and desires. In order to achieve this goal, the Alzheimer Society of Canada looked for evidence-based research that shows how to successfully implement person-centred programs and practices in long-term care homes. The result of this research is the Guidelines for Care Framework, which includes the input of people with dementia, family care partners, researchers, educators, long-term care home staff, and various stakeholders.
Through its culture change initiative, the Alzheimer Society of Canada aims to improve the experience of long-term care for people with dementia and their families, and is working with others to provide useful strategies, tools and tips that can help put the principles of person-centred care into practice. Seven key elements for delivering person-centred care stood out in our research. These are outlined in the information sheets below entitled PC P.E.A.R.L.S.®:
Language is our unique human gift and our most powerful means of communication. Words can inform and comfort us, excite and thrill us, warm our hearts and inflame our desires. Words can also slap and punch us, rattle our nerves, discourage our initiative and destroy our self-confidence. We react physically and emotionally to what is said to us and about us. How language is used can affect us as powerfully as physical actions. This is the power of words. Language used to describe Alzheimer's disease and other dementia's has historically been largely negative, focusing on the losses experienced by the person living with dementia. While these losses are real, this negativity has contributed to the development and promotion of perceptions, interpretations and approaches to care that focus on weakness rather than strength, illness rather than wellness and victims rather than whole persons.
The term “Involuntary Separation” does not mean getting a legal separation or divorce. This means that the spouses are considered single only for the purpose of calculating their OAS and GIS benefits.
“Involuntary Separation” refers to a situation in which senior couples must live apart due to circumstances beyond their control, often because one or both need long-term care. This separation can place a financial strain on the couple, especially if their income is limited to public pensions like Old Age Security (OAS), Guaranteed Income Supplement (GIS), and Canada Pension Plan (CPP).
Couples can apply for “Involuntary Separation” status under the Old Age Security Act to alleviate this. This allows each spouse to be treated as single for OAS and GIS calculations, potentially increasing their benefits. This status is granted when the separation is involuntary, such as when one or both spouses must move to a long-term care facility.
For more details, you can contact Service Canada or visit Your Complete Guide to Canada's Old Age Security Program.
To qualify for “Involuntary Separation” status under the Old Age Security (OAS) Act in Canada, the following criteria must be met:
Physical Separation - You and your spouse must be living apart, no longer under the same roof.
Involuntary Nature - The separation must be due to circumstances beyond your control, such as health issues requiring one or both spouses to move to a long-term care facility.
Age Requirement - At least one spouse must be 65 years or older and receiving OAS.
Marital Status - You must be legally married or in a common-law partnership.
If these conditions are met, you can apply to have each spouse treated as single to calculate OAS and GIS benefits, potentially increasing the financial support you receive.
To apply for “Involuntary Separation” status in Canada, follow these steps:
Fill out the form with accurate information about your situation. Ensure you provide all required details to demonstrate that the separation is involuntary due to circumstances beyond your control.
You can submit the completed forms to Service Canada by mail, phone, in person, or online.
For further guidance, visit Service Canada or speak with a representative at 1-800-277-9914.
This book is about life changes. It is meant to help you prepare for possible changes, and to connect you with services in your community. It has suggestions and information about resources to help you. It is based on what people receiving palliative care, their families, and health care providers have told us.
A guide to creating inclusive services for LGBTQ2S+ for older adults.
This toolkit is an interactive resource with print and online components. It will help you to learn about equity, diversity and inclusion and how to apply these concepts to your work in LTC.
A guide for employers. Building a resilient and sustainable workforce. Purpose of this guide: Build awareness and understanding of caregiving in the workplace. Guide workplaces on how to develop policies and practices that are supportive to care partners and benefit the workplace. Support managers in workplaces to understand, support, accommodate and demonstrate a commitment to working care partners. Empower working care partners and enhance access to supports that address their unique challenges.
This toolkit was designed to help you manage the competing needs of work and caregiving while taking care of your own health and happiness at the same time. Caregiving needs change over time - you may need to re-assess and problem-solve a few times to better manage work, caregiving and your own needs. You can revisit the sections of this toolkit as your needs continue to evolve. This toolkit provides practical tools and tips to help you find solutions that could work for you and your employer. You will learn about ideas to help you manage caregiving, options to explore greater flexibility and support at work, and tips for talking with your employer about solutions. Using this toolkit will help you understand the importance of taking care of yourself and your own mental health, in order to find a better balance in juggling the demands of being a working care partner.
How to use sporting heritage in memories and reminiscence activities. This handbook has been created to give you further insight into the application of sporting heritage programmes and provide a reference for your use in the future. It will help address issues such as training and the conduct of groups, as well as provide helpful hints as to how resources can be found and used.
Being diagnosed under the age of 65 presents unique challenges and there are many topics to consider, including, finances, children, employment, and health wishes. Living with dementia can cause big changes in individuals and families future plans as many need to consider how life needs and wishes may change as a person's dementia progresses. Since there is no cure or treatment and dementia is a progressive disease that can affect reasoning and communication it is important to plan for your future and ensure that others know how they can assist you with putting those plan into action, when needed.
Being diagnosed under the age of 65 presents unique challenges and there are many topics to consider, including, finances, children, employment, and health wishes. Living with dementia can cause big changes in individuals and families future plans as many need to consider how life needs and wishes may change as a person's dementia progresses. Your caregiving role is dependent on the needs of the person with dementia and your unique situation.
Young Onset Dementia is the term used to describe people under the age of 65 years who have been diagnosed with a type of dementia. People under the age of 65 years are often still working, many are raising dependent children, and some are also caring for an elderly relative. People with Young Onset Dementia have numerous decisions to make and a range of service options to consider as their dementia progresses. They frequently report not knowing what services are available or how to access those services. This resource guide is one of several documents to give information and support to Young Onset families as they journey through the process of gaining supports and services that they need as they live with dementia.
Care Partners, these next scenarios are not here to scare you, but we want to make you aware of things that may happen. It is important to know that these things do not happen to everyone, but knowing it can, will better prepare you in the case these situations arise. Within each of the situations below, there can be many individual experiences, they can range mild to extreme. Remind yourself that your family member has dementia, and this is the cause of these situations.
Outil d'écriture pour soutenir les aidants à se retrouver eux-mêmes, après s'être occupés d'un conjoint vivant avec un trouble neurocognitif. Apprendre à se retrouver peut se révéler nécessaire au processus de deuil; il permet à une personne de passer à une autre étape tout en honorant son passé.
Journey through the diagnosis of dementia.
The caregiving role does not end with the move; however, it evolves and is different in some respects. It can be daunting and difficult at first - what do I do now? Where do I fit in? You are now a "partner in care" with the staff. Your role is to inform, advise, recommend and encourage best quality care for your family member/relative/ friend.
Person Living with Dementia Version
For people living in a care home setting.
Outline of what the requirements are for an Ambassador
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